Purpose: Linking ready-made questionnaires to codes within the International Classification of Functioning, Disability and Health, Children and Youth Version with the intention of using the information statistically for studying mental health problems can pose several challenges. Many of the constructs measured are latent, and therefore, difficult to describe in single codes. The aim of this study was to describe and discuss challenges encountered in this coding process.
Materials and methods: A questionnaire from a Swedish research programme was linked to the International Classification of Functioning, Disability and Health, Children and Youth Version and the agreement was assessed.
Results: Including the original aim of the questionnaire into the coding process was found to be very important for managing the coding of the latent constructs of the items. Items from the International Classification of Functioning, Disability and Health, Children and Youth Version chapters with narrow definitions for example mental functions, were more easily translated to meaningful concepts to code, while broadly defined chapters, such as interactions and relationships, were more difficult.
Conclusion: This study stresses the importance of a clear, predefined coding scheme as well as the importance of not relying too heavily on common linking rules, especially in cases when it is not possible to use multiple codes for a single item.
To cite this article: Lilly Augustine , Frida Lygnegård , Mats Granlund & Margareta Adolfsson (2017): Linking youths’ mental, psychosocial, and emotional functioning to ICF-CY: lessons learned, Disability and Rehabilitation, DOI: 10.1080/09638288.2017.1334238
Swedish Research Council, FORTE, VINNOVA, Formas, Säfstaholm Foundation, Sunnerdahl Disability Foundation, Futurum Academy for Health and Care Jönköping County Council.
Contact: Frida Lygnegård
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