Self-reported Participation for Adolescents with Disabilities and Long-term Health Conditions

Frida Lygnegård, PhD Student of Disability Studies, HHJ

This is the first Swedish long-term study of everyday functioning and participation that includes adolescents with disabilities, including those attending the curriculum in the compulsory school for pupils with learning impairments. The research will be based on longitudinal data and the overall aim is to longitudinally study causal relationships between individual and environmental factors and their impact on adolescents' self-reported participation in everyday situations. The data is based on the adolescents' own views. The project is part of the Research program LoRDIA (Longitudinal Research in Development in Adolescence) at Jönköping University in collaboration with the University of Gothenburg. The first study describes methodological challenges in using the International Classification of Functioning, Disability and Health- Children and Youth version ( ICF-CY) to investigating mental health in adolescence on a group level. The second study aims at identifying how individual and contextual factors relates to self-reported participation profiles in domestic life and peer relations for adolescents with and without disabilities and long-term health conditions. The third study aims at identifying individual and environmental factors that have a longitudinal impact on the self-reported experience of participation outside school. The fourth study in the thesis will focus on how patterns of participation change over time regarding frequency and involvement in domestic life and in peer relations for adolescents with and without disabilities and long-term health conditions. The outcome of the project is expected to illuminate important aspects that affect the experience of participation of young people with and without disabilities and long-term health conditions.

List of publications:

  • Augustine, L., Lygnegård, F., Granlund, M., & Adolfsson, M. (2017). Linking youths’ mental, psychosocial, and emotional functioning to ICF-CY: lessons learned. Disability and Rehabilitation, 1-7.
  • Lygnegård, F. Almqvist, L., Granlund, M., & Huus, K. (submitted) Participation profiles in domestic life and peer relations as experienced by adolescents with and without impairments and long-term health conditions.

Contact: Frida Lygnegård, PhD Student of Disability Studies, Department of Social work, School of Health and Welfare, Jönköpings University.

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